What It’s About
Robert Hoge was born with a facial tumor and deformed legs. This is his memoir of a childhood of surgeries and misadventures, bullying and friendships, growing up and ultimately learning to love his body and his face.
Why I Think You’d Like It
I’m probably supposed to write about how inspiring and moving and educational this is, but honestly, I want start off recommending it for its humor. It’s a book about surgeries and prejudice and kids being assholes, but it’s also about spitballs, sports, what happens when you cross clunky prosthetics with a bicycle and a beehive. It’s about getting stuck in the mud and rescued by a nun, and refusing to learn from that experience, because mud is fun.
And there’s sad stuff too. When he was born, his mother was terrified to look at him, overwhelmed by the prospect of raising him, and has to go through a journey before she decides to take him home. Too many stories either erase or excuse the ableist reactions of a parent who first has a disabled child. I love that this story is there, without sugar coating, and also that he can talk about his mother overcoming that reaction without excusing it. That story was part of his normal; and not, thankfully, something used to make him feel guilty or grateful. It was a story of how his mother almost made the biggest mistake of her life, and missed out on a beloved son. In that one story there’s so much to learn about ableism and societal pressures and family and how love isn’t just a feeling but also a choice. And it’s just one of many equally thought provoking stories in the book.
I think there’s a huge need for well-rounded books about disability. His story is full of sad parts and happy parts, but it’s neither a doom and gloom navel gazing memoir nor a sugary mess of Inspiration!(TM) It’s an honest book about an ordinary person being dealt a really crappy starting hand, making the best of it, and going on to have a life of his own.
None; even the descriptions of the surgeries and bullying hit a good balance of honest, but not graphic or immersive. This is probably because the book is actually aimed at middle grade readers, though I recommend it for anyone of any age.